Your data – Own it

“The core idea is that we, you and I, should have an easy way to see where data about us goes, specify who can use it, and alter these decisions over time.”

This is what MyData Global is fighting for. MyData Global wants to empower individuals by improving their right to self-determination regarding their personal data. The human-centric paradigm aims at a fair, sustainable, and prosperous digital society, where the sharing of personal data is based on trust as well as a balanced and fair relationship between individuals and organizations.

This mission of MyData has been around for years amongst a group of personal data enthusiasts from all over the globe who formed a network to collaborate and share expertise and best practices. This network was turned into a more formal structure by realizing the first MyData meeting in 2016 in Helsinki and finally culminated in the funding of the MyData association on Oct 11, 2018, with over 70 organizations and 400 individuals being founding members, now acting as ambassadors for the movement.

The MyData initiative was recently awarded the NGI Culture Award ( European commission’s “Next Generation Internet ” -initiative) as one of the most impactful European initiatives shaping a new culture around Next Generation Internet. The fair use of personal data is one of the defining issues of tomorrow’s internet. AI and other technological developments rely on data generated by and about individuals, and MyData provides a paradigm for guiding those in a way that is based on trust and benefits people.


healthbank
takes data ownership and data control very seriously and I am proud to say that we are therefore also on the of the founding members of MyData Global. For us it is essential that people do have the right to own a copy of their medical data and decide what happens with it. This is why we take care of GDPR and guarantee a dynamic consent tool while building our healthbank data transaction platform (healthbank.me). But our mission does not end there. We would like to support MyData Global’s mission and act as spokespersons to bring this philosophy of self-determination regarding your personal data to the general public and lead discussions about fair data sharing. We are therefore involved in the Zurich MyData hub, which is part of a network of over 20 local hubs spread over six continents acting as multiplier of MyData’s voice.

Are digital human rights also something that drives you in your work? Would you like to be part of a group of personal data enthusiast? Then make a step forward and join the Zurich MyData Hub and let’s start to put the vision into action and bring the message to the people!

Autor: Dr. Daniela Gunz, Dir. of Research Partnership at healthbank, with excerpts from MyData Global communication.
Contact details: daniela.gunz@healthbank.coop / Twitter @DanielaGunz

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